The Breaking Barriers Podcast

Inside the Mind with Dr. Raskin

In this thoughtful and informative episode, we sit down with Dr. Raskin, a Pediatric Neurosurgeon, to talk about some of the conditions that affect children and families the most. Dr. Raskin helps us understand epilepsy and when surgery can be a life-changing option, movement disorders-especially in the context of rare conditions like Edwards Syndrome-and hydrocephalus, a condition that can sound scary but is often treatable. Whether you're a parent navigating a diagnosis or just want to better understand the brain, this episode offers clarity, compassion, and hope from someone who's spent his career helping families through some of their most difficult moments.

Mother's Day Episode-Voices of Hope and Honor!

In this special Mother's Day episode, we honor the incredible strength, love and resilience of mothers raising- or who have raised-children with Edwards Syndrome (Trisomy 18). Join us as we sit down with a group of brave and compassionate moms who share their deeply personal journeys: the challenges, the beauty in the small moments, the advocacy, and the unbreakable bonds formed through love and loss. This heartfelt conversation sheds light on a rare condition while celebrating the powerful role of motherhood in all its forms. Whether you're familiar with Edwards Syndrome or just want to be inspired by real stories of courage and connection, this episode will leave a lasting impression. 

Breathing Through the Night: Understanding Sleep Apnea with Dr. Iverson

In this episode of The Breaking Barriers Podcast, we're joined by ENT specialist Dr. Iverson to dive into a condition that affects millions but is often misunderstood- sleep apena. From the warning signs to the latest treatment options, Dr. Iverson breaks down the science in a way that's both informative and empowering. 
 
Tune in as we break down the barriers to better sleep, one breath at a time.  

Hearing Loss Episode 2 with Dr. Iverson about Trisomy 18 and Cochlear Implants with Crystal Simpson sharing Gunnars Journey

Trisomy 18 and Cochlear Implants with Crystal Simpson sharing Gunnars Journey

Epilepsy Awareness with Jeanna Polacek

Epilepsy impacts roughly 1/3rd of people with Edwards Syndrome. Some have controlled seizures and others do not.
 
We are excited to share with you the epilepsy journey of one of The ESA founding kiddos Mia through our Breaking Barriers Podcast

Hearing Loss Series-Episode (Mom Talk)

Our Second episode of our Hearing Loss series. In this episode us three moms within the ESA Board will be discussing our very own hearing loss journey with our children. 

Hearing Loss Series, Episode 1

Our first episode of our Hearing Loss Series with a T18 Advocate Doctor, Dr Kenneth Iverson, ENT at University of Kentucky Children's.
 

All About ESA

Learn all about The Edwards Syndrome Association and the vision for The Breaking Barriers Podcast!